MyBESTRuns

Tyler Diniz is running the Falmouth Road Race on behalf of Jett Foundation, a nonprofit fighting Duchenne muscular dystrophy

Funds raised by each racer on Jett Foundation’s Go! for Duchenne team support their many programs including Camp Promise, a free week of summer camp at three locations across the country for kids and young adults with select neuromuscular disorders like DMD, SMA, Becker, and more; Jett Giving Fund, a matching gift program to help families impacted by DMD purchase vital accessibility equipment like accessible vans, stairlifts and more.

Ready. Set. Jett. Family Workshops, a national educational workshop series for families to learn about DMD care, resources and treatments from local clinicians, experts and industry partners; and National Community Ambassador program, an opportunity for parents, friends and family members of individuals impacted by Duchenne to share resources and educate within the community. Ambassadors also facilitate local support groups and events for parents and families.

“As someone who has always been passionate about athletics and sports, I am running this August for those who can’t,” said Diniz.

“I am inspired by the many programs Jett Foundation offers, but most especially by their programs that give families access to safe, accessible sporting and physical activities like Camp Promise, Jett Giving Fund, educational workshops and more.”

To support awareness and fundraising efforts, Diniz and his family are hosting a beer tasting and cornhole tournament, with proceeds being donated to Jett Foundation.

posted Friday August 9th